Navigating the NDIS Planning Process for Complex Behaviour Support Needs

The NDIS planning process can feel overwhelming, especially when you're supporting a Participant with complex behaviour support needs. Understanding how to effectively navigate this process is crucial to securing a Plan that adequately addresses those needs and promotes a better quality of life. This blog post will guide you through the key considerations and practical steps involved.

See our complete NDIS Complex Behaviour Support guide for more detailed information.

Key NDIS Considerations for Complex Behaviour Support Needs

Successfully advocating for a Plan that adequately supports complex behaviour needs requires a solid understanding of several key NDIS principles and considerations.

1. Understanding "Complex Needs": The NDIS recognises that some Participants require more specialised and intensive support. "Complex needs" in the context of behaviour support typically involve behaviours that impact safety, independence, and social participation. These may include behaviours that are self-injurious, aggressive towards others, or significantly disrupt daily life. Demonstrating the impact of these behaviours is paramount during the planning process.

2. Importance of Functional Assessments: A thorough functional behaviour assessment (FBA) is vital. This assessment, conducted by a qualified behaviour support practitioner, aims to understand the triggers, functions, and consequences of specific behaviours. The FBA should clearly identify the underlying reasons for the behaviours and inform the development of evidence-based strategies. The NDIS places significant value on assessments that are data-driven and outcome-focused.

3. Positive Behaviour Support (PBS) Framework: The NDIS strongly promotes Positive Behaviour Support. PBS is an evidence-based framework that focuses on proactive strategies, environmental modifications, and teaching new skills to reduce the likelihood of challenging behaviours. A well-developed PBS plan should be person-centred, ethical, and respectful of the Participant's rights and choices. It should also involve the Participant, their family, and Support Workers.

4. Core Supports vs. Capacity Building: Understanding the distinction between Core Supports and Capacity Building Supports is essential.

• Core Supports: These assist with daily living activities and help Participants pursue their goals. Funding under Core Supports may cover assistance with personal care, household tasks, and participation in community activities. For individuals with complex behaviours, this might include funding for a Support Worker with specialised training in behaviour support strategies to assist with daily routines and community engagement.

• Capacity Building Supports: These are designed to build the Participant's independence and skills over time. In the context of behaviour support, this may include funding for a behaviour support practitioner to develop and implement a PBS plan, provide training to Support Workers and family members, and monitor progress. It could also include funding for therapeutic supports that address underlying issues contributing to challenging behaviours, such as speech therapy, occupational therapy, or psychology.

5. Reasonable and Necessary Test: All supports requested in the NDIS Plan must meet the "reasonable and necessary" criteria. This means the support must be:

• Related to the Participant's disability.
• Necessary for the Participant to pursue their goals.
• Represent value for money.
• Effective and beneficial for the Participant.
• Taking into account what is reasonable to expect families and other informal supports to provide.

6. Support Coordination: For Participants with complex needs, Support Coordination is highly recommended. A Support Coordinator can assist with navigating the NDIS, connecting with appropriate service providers, implementing the Plan, and advocating for the Participant's needs. They can also help to ensure that all supports are aligned with the PBS plan and working collaboratively to achieve positive outcomes.

Practical Steps for a Successful Planning Meeting

Following these steps will help you prepare for and participate effectively in the NDIS planning meeting.

1. Gather Comprehensive Documentation: Assemble all relevant documentation, including:

• The Participant's most recent FBA and PBS plan.
• Reports from therapists and other professionals involved in the Participant's care.
• Incident reports detailing the frequency, severity, and impact of challenging behaviours.
• A clear statement of the Participant's goals and aspirations.
• Letters of support from family members, friends, and service providers.

2. Clearly Articulate the Participant's Needs: Prepare a written statement that clearly outlines the Participant's complex behaviour support needs. Be specific about the types of supports required, the frequency and duration of support, and the qualifications of the individuals providing the support. Provide concrete examples of how the behaviours impact the Participant's life and the lives of those around them. Focus on the positive outcomes that you hope to achieve with the requested supports.

3. Request Specific Funding Categories: During the planning meeting, clearly request funding for specific support categories, such as:

• Behaviour Support: For the development, implementation, and monitoring of the PBS plan.
• Specialised Support Coordination: To manage complex supports and navigate the service system.
• Training for Support Workers and Family Members: To ensure everyone is equipped to implement the PBS plan effectively.
• Therapeutic Supports: To address underlying issues contributing to challenging behaviours.
• Assistance with Daily Life: For Support Workers to assist with daily routines and community participation, using PBS strategies.
• Home Modifications: If the environment contributes to or exacerbates the behaviours.
• Assistive Technology: Including communication aids or environmental controls to manage behaviours or communication.

4. Advocate for Evidence-Based Practices: Emphasise the importance of evidence-based practices and the need for qualified professionals to deliver the supports. Be prepared to discuss the evidence base for the strategies outlined in the PBS plan.

5. Actively Participate in the Planning Meeting: Be prepared to answer questions about the Participant's needs and to advocate for the supports that you believe are necessary. Be clear, concise, and respectful in your communication. If you are unsure about something, ask for clarification.

6. Review the Draft Plan Carefully: After the planning meeting, carefully review the draft Plan to ensure that it accurately reflects the Participant's needs and the supports that were agreed upon. If you identify any discrepancies, contact the NDIS Planner immediately to discuss your concerns.

7. Request a Review if Necessary: If you are not satisfied with the final Plan, you have the right to request an internal review. If the internal review is unsuccessful, you can appeal the decision to the Administrative Appeals Tribunal (AAT).

Conclusion

Navigating the NDIS planning process for Participants with complex behaviour support needs requires careful preparation, thorough documentation, and effective advocacy. By understanding the key NDIS principles, following the practical steps outlined in this blog post, and working collaboratively with the NDIS and other professionals, you can help ensure that the Participant receives a Plan that adequately addresses their needs and promotes a better quality of life. Remember to continuously monitor the plan's effectiveness and seek adjustments as needed to ensure the Participant continues to thrive.